Thursday, May 7, 2009

merci gladys

My sister had her baby early. Merci Gladys was born April 20, 2009. Her actual due date was May 7th. She was born early on a Monday morning. My sister went into labor on Sunday. It was Divine Mercy Sunday. How cool! Her middle name is my maternal grandmother's name.

Merci was born with Pfeiffer Syndrome. It causes early bone fusion. This primarily affected the bones in her head. Her elbows are also fused. I was fortunate to be able to see my newest niece already. She has already had her first photo shoot:) A week after her birth she had her first surgery to relieve the pressure on her brain from the early bone fusion. She did great and her head shape looks really good! We were all so impressed. One week after that she had a tracheostomy. Her nasal passage is closed on one side and so very tiny on the other. If all goes well, she will have it for 1-2 years. She is being cared for by some of the best doctors/teams in the world at Mayo Clinic and we are so grateful for that. She is so sweet and we are happy to have her here with us. I know that my sister is anxious to get her home.

Please keep her in your prayers so that she can hurry home to join her 6 brothers and sisters. Yes. Merci is number 7. And yes. My sister is crazy. Just kidding Gina.

Kind of:)

merci announcement re 650


Stephanie said...

beautiful announcement! you know they are in my thoughts and prayers. {{HUGS}}